The Difficult Choice: 💔 Madison Brush decides on amputation surgery for her daughter due to a rare genetic condition.
The Difficult Choice: 💔 Madison Brush decides on amputation surgery for her daughter due to a rare genetic condition.
Sister Wives star Madison “Maddie” Brown Brush and her husband Caleb faced an unimaginable challenge when their daughter, Evangalynn “Evie” Kodi, was born with a rare genetic condition known as FATCO syndrome (Fibular Aplasia, Tibial Campomelia, and Oligosyndactyly). This syndrome severely affects bone formation, and in Evie’s case, resulted in several limb differences, including missing bones in her leg and hand.
After consulting numerous specialists and dedicating months to research and painful deliberation, Maddie and Caleb made the incredibly difficult, but ultimately loving, decision to proceed with a Boyd amputation on Evie’s foot.
Maddie bravely shared that the choice was made for the sake of Evie’s long-term quality of life and mobility. Doctors explained that attempting to lengthen the shortened leg would require years of painful, risky surgeries with no guarantee of success. The amputation, performed just after Evie’s first birthday, was instead a pragmatic step, laying the “groundwork for her new foot and mobility it will bring.”
This heartbreaking choice highlighted Maddie’s immense strength as a mother. She and Caleb have been transparent about their journey, not to seek pity, but to raise awareness for FATCO syndrome and to ensure Evie grows up proud of who she is.
Evie, who has since been fitted with a prosthetic, is now thriving. Her resilience is an inspiration, and her parents’ decision, while difficult, has secured a future where she can run, play, and live actively. Maddie and Caleb’s willingness to be open about their hardest choice demonstrates the true depth of their commitment to their daughter’s happiness and future.
(See Evie’s incredible progress and how she uses her prosthetic leg in the comments below! 👇)
